Marfan Association UK logo.  Where the M is represented by a red heart containing breaks symbolising aortic dissection

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About Us

The Marfan Association UK was founded in 1984.
Little was known about Marfan syndrome and its effects on patients and family members at that time.
Our goal was to increase awareness amongst the medical profession, thus saving lives through early diagnosis, whilst providing support for patients, their families and medical professionals around the world.  
Our three main objectives are 

Support, Education and Research.

In order to achieve the best for our members we work on a national basis while working closely with colleagues around the world.

We support those with Marfan Syndrome and their families…….We are aware that the unaffected family members may also need help to “come to terms with MFS”. 

A National Marfan Support Network is available.

We educate by distributing updated Marfan text to lay and professional sectors, holding and participating in School and Hospital meetings around the country.


Early diagnosis is vital - we believe this is achieved by spreading  information widely.


A Publications List is available covering the many aspects of MFS.

We research by undertaking, sponsoring, and participating in, national research projects.


Already the gene has been discovered.

Our Mission Statement

To improve and prolong the lives of people with Marfan syndrome.

Our Red Heart Logo

The M of Marfan is represented by the red heart logo which contains breaks that symbolise aortic dissection.

Our Mascot "Marf" The Giraffe

Has been chosen because the giraffe is so tall and appealing and may suffer similar medical problems.

Our Slogan

"Support for Today with Tomorrow in Mind"

Is to show that although we implement "tactical" solutions for patients now, we shall never lose sight of the "strategic" goals that will benefit future generations.

Our Vision

is to see automatic screening of patients and family members, followed by more preventive comprehensive patient care and treatment and an improved understanding of Marfan syndrome and its impact on daily living - at home - at school - at work and at play.

Please join the Marfan Association UK today.    YOU NEED US AND WE NEED YOU!!

Copyright 2007
Marfan Association UK is a registered Charity No. 802727
Head Office at Rochester House, 5 Aldershot Road, Fleet, Hants, GU51 3NG
Established 1984