Terms and Conditions
Terms and conditions for use of the Marfan Association website
[This page was last updated on 8th June 2008]
The Marfan Association website is managed by the Marfan Central Office (MCO: referred to as 'We' below).
In entering our site you as a user ('You') are accepting our terms and conditions.
Using the Marfan Association website
The Marfan Association website is maintained for your personal use and viewing. The access and use
of the Marfan Association website featuring these terms and conditions constitutes your acceptance of these terms and conditions.
They take effect from the date on which you first use this website.
You agree to use this site only for lawful purposes, and in a manner that does not infringe the rights
of, or restrict or inhibit the use and enjoyment of, this site by any third party. Such restriction or inhibition includes,
without limitation, conduct which is unlawful, or which may harass or cause distress or inconvenience to any person, and the
transmission of obscene or offensive content or disruption of normal flow of dialogue within this site.
You are prohibited from posting or transmitting via this website any unlawful, defamatory, obscene,
offensive or scandalous material, or any material that constitutes or encourages conduct that would be considered a criminal
offence, likely to give rise to civil liability, or otherwise violates any law. We will fully co-operate with any law enforcement
authorities or court order lawfully requesting or directing us to disclose the identity of anyone posting any such information
or materials on this website.
Information collected by us is used for internal review to:
· improve the content of the Marfan
· customise the content and/or layout
of the Marfan Association website
· notify users (with their consent)
about updates to the Marfan Association website
· contact users (with their consent)
for marketing purposesInformation collected is not shared with other organisations for commercial purposes.
Linking to the Marfan Association website
"The Marfan Association encourages other websites to link to it"
The Marfan Association welcomes and encourages other websites to link to the information that is hosted
on these pages. You do not have to ask permission to link but We can provide wording and linking graphics.
The Marfan Association website and material relating to information, products and services (or to third
party information, products and services), is provided 'as is', without any representation or endorsement made and without
warranty of any kind whether express or implied, including, but not limited to, the implied warranties of satisfactory quality,
fitness for a particular purpose, non-infringement, compatibility, security, completeness and accuracy.
We do not warrant or represent that the functions contained in the material available on this site
will be uninterrupted or error free, that defects will be corrected, or that this site or the server that makes it available
are free of viruses or represent the full functionality, accuracy or reliability of the materials.
In no event will We be liable for any expense, loss or damage including, without limitation, indirect
or consequential loss or damage, or any expense, loss or damage whatsoever arising from use, or loss of use, of data, or loss
of profits, arising out of or in connection with the use of www.marfan-association.org.uk, or reliance on its content.
No data transmission over the internet can be guaranteed as totally secure. Whilst We strive
to protect such information, we do not warrant and cannot ensure the security of any information which you transmit to us.
Accordingly, any information which you transmit to us is transmitted at your own risk.
The Marfan Association website is not a substitute for independent professional advice and users should
obtain any appropriate professional advice relevant to their particular circumstances.
The material on this website may include the views or recommendations of third parties, which do not
necessarily reflect the views of the Marfan Association, or indicate its commitment to a particular course of action. We assume
no responsibility or liability arising in respect of any such third party material.
These terms and conditions shall be governed by and construed in accordance with the laws of England
and Wales. Any dispute arising under these terms and conditions shall be subject to the exclusive jurisdiction of the courts
of England and Wales.
Links to external websites
"We are not responsible for the content of any linked site"
Links on the Marfan Association website will lead to other websites which are not under our control.
We are not responsible for the content of any linked site. Listing and linking should not be taken as an endorsement of any
kind and We accept no liability in respect of the content. We cannot guarantee that these links will work all of the time
and have no control over the availability of the linked pages.
We make every effort to check and test material at all stages of production. You must take your own
precautions to ensure that the process which You employ for accessing this website does not expose You to the risk of viruses,
malicious computer code or other forms of interference which may damage your own computer system. It is always wise for You
to run an anti-virus program on all material downloaded from the internet.
We cannot accept any responsibility for any loss, disruption or damage to your data or your computer
system which may occur whilst using material derived from this website.
We may at any time revise these terms and conditions without notice. Please check regularly. Continued
use of the the Marfan Association website after a change has been made is your acceptance of the change.
We accept no liability for any failure to comply with these terms and conditions where such failure
is due to circumstance beyond our reasonable control.
If We waive any rights available to us under these terms and conditions on one occasion, this does
not means that those rights will automatically be waived on any other occasion.
If any of these terms and conditions are held to be invalid, unenforceable or illegal for any reason,
the remaining terms and conditions shall nevertheless continue in full force.