We support those with Marfan Syndrome and their families…….We are aware that the unaffected family members may also need help to “come to terms with MFS”. 

A National Marfan Support Network is available.

We educate by distributing updated Marfan text to lay and professional sectors, holding and participating in School and Hospital meetings around the country.

Early diagnosis is vital - we believe this is achieved by spreading  information widely.

A Publications List is available covering the many aspects of MFS.

We research by undertaking, sponsoring, and participating in, national research projects.

Already the gene has been discovered.

Has been chosen because the giraffe is so tall and appealing and may suffer similar medical problems.

Is to show that although we implement "tactical" solutions for patients now, we shall never lose sight of the "strategic" goals that will benefit future generations.