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Publications List

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����������� 1.Marfan Emergency Card�������� - �2 Free to members }���� Annual Subscription is �15 per year

����������� 1a. Marfan “In Touch” Magazine - �3 Free to members }������ due 1st Feb. annually ���(�22 overseas)

Basic Pack - �10 (incl postage & packing)

2. Fact Sheet on Marfan Syndrome 2008

3. A4 Large Marfan Fact Book on MFS - 2002

4. Pamphlet for the Ophthalmic Profession - 2008

5. Pamphlet for the Chiropody Profession - 2003

6. Pamphlet for the Dental Profession - 2002

6a.Pamphlet - Musculoskeletal Problems - 2002

6b.Pamphlet- Psychosocial Aspects - 2002

6c.Pamphlet for ENT Surgeons - 2002

A4 Clinical Guide is available for doctors - 2002

Further Reading - �3 each item

7.Emergency Diag & Treat of Aortic Dissection - 1998

8.Booklet - Before & After Birth - 1998

9.Booklet for Teenagers - 2005

10. Booklet-A Very Special Mouse -for children 1990

11. Booklet for Teachers - 1993

12a Booklet - Gospel Poems - Relaxation with Jesus

12b Booklet - Gospel Poems - A Moment with Jesus

���������� Set of Pamphlets - �1.00

13. MARFAN VIDEO 2000 - �15 per copy - 2hrs. 35 mins.

Scoliosis Management; Eye Problems; Aortic Surgery; Research Update; the Teen`Years; the Marfan Association UK

13a. MARFAN VIDEO 2003 - �15 per copy - 2hrs. 47 mins.

International Research Update; Ear, Nose and Throat; Orthotics; European Marfan Study Findings

13b. MARFAN INFO TAPE FOR THE VISUALLY IMPAIRED - �4 donation

13c. WAYNE’S RECIPE BOOK - “A Zest for Life” - �4 per copy

Information Leaflets - Min. of 50p per item helps us to re-print - Thank you

14. Care of Symptomatic Marfan Joints - 2002�������������� 38. Impact on the Whole Family - 2004

15. Role of Nutrition in Irritable Bowel Synd - 2001����� 39. Management of Eye Problems - 2004

16. Pain Management - 2001����������������������������������������� � 40. Inherited Ophthalmic Disorders - 2006

17. InternationalResearch Update - 2002�������������������� 41. Orthopaedic Aspects of MFS - 2005

18. Genetic Testing in Marfan Syndrome - 2002���������� 42. The Alexander Technique - 2004

19. The Use of Hormone Treatment - 1997����������������� �� 43. Fact Sheet - Large Print

20. Dental Health for Heart Patients (B.H.F)�����������������44. Infantile & Neonatal Marfan Syndrome 1995

21. Living With Marfan Syndrome - 2004��������������������� 45. Marfan Research Update - 2004

22. Pregnancy in Marfan Patients - 1996������������������������46. Obstructive Sleep Hypopnea - 1995

23. Genetics & Insurance Brief Survey Result 1997�����47. New Hope for Marfan Lit Review - 2006

24. Addressing Special Needs of Siblings - 1997������������48. Health Supervision - Birth to 21 yrs - 1999

25. Simon’s Poem - teens view, living with MFS 1985�����������49. Genetics and Insurance - 2001

26. Advice for the Older Marfan Patient�������������������������50. Practical Paediatrics in MFS 2002

27. Revised Diagnostic Criteria (Ghent) - 1996������������� 51. General Medical Research Report 2002

28. Marfan syndrome and the Eye - 2004����������������������� 52. ENT, Bone & Joint, & Dental Aspects 2002

29. Research Developments - 2005������������������������������� 53. Info Day Workshop - Growing Older 2002

30. Advice Regarding Feet & Footwear - 1996�������������� 54. Info Day Workshop- Marfan and the Mind 2002

31. Physiotherapy for Joint Hypermobility - 2004����� �����55. Info Day Workshop Growing with MFS 2002

32. Article: Midwives’ Journal & Reply-1996���������������� 56. Joint Hypermobility - patient survey 2003

33. Sports Guidelines - 1993���������������������������������������������57. Marfan and Pilates - 2003

34. FBN1 Mutation Screening - 2005����������������������������� 58. Orthotic Management of the Ankle/Foot 2003

35. Incidence of Osteopenia in MFS - 1995������������������� 59. Losartan - “A Whole Lot of Optimism” - 2005

36. Joint & Skin Manifestations Prevalent- 1995������������� 60. Ageing and Marfan Syndrome - 2002

37. MFS & Overlapping Conditions - 2002������������������ 61. Joint Hypermobility Syndrome (pain mgmt) - 2003

Copyright 2007
Marfan Association UK is a registered Charity No. 802727
Head Office at Rochester House, 5 Aldershot Road, Fleet, Hants, GU51 3NG
Established 1984