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Publications List click here to download the Publication List �����������
1.� �Marfan
Emergency Card�������� - �2 Free to
members }���� �Annual Subscription is �15 per year �����������
1a. Marfan “In Touch” Magazine - �3 Free to members }������ due 1st Feb. annually ���(�22
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Basic Pack - �10 �(incl
postage & packing) 2. Fact Sheet on Marfan
Syndrome 2008 3. A4 Large Marfan Fact
Book on MFS - 2002 4. Pamphlet for the Ophthalmic
Profession - 2008 5. Pamphlet for the Chiropody
Profession - 2003 6. Pamphlet for the Dental
Profession - 2002 6a.Pamphlet - Musculoskeletal Problems - 2002 6b.Pamphlet- Psychosocial Aspects - 2002 6c.Pamphlet for ENT Surgeons - 2002 A4 Clinical Guide is
available for doctors - 2002 |
Further 7.Emergency
Diag & Treat of Aortic Dissection - 1998 8.� Booklet - Before & After Birth - 1998 9.� Booklet for Teenagers - 2005 10. Booklet-A Very Special Mouse -for children 1990 11. Booklet for Teachers - 1993 12a Booklet - Gospel Poems - Relaxation with Jesus 12b Booklet �- Gospel Poems -
A Moment with Jesus ���������� Set of Pamphlets
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13. MARFAN VIDEO 2000 - �15 per copy - 2hrs. 35 mins. Scoliosis Management; Eye Problems; Aortic Surgery; Research Update; the Teen`Years; the
Marfan Association �13a. MARFAN VIDEO 2003 - �15 per copy -
2hrs. 47 mins. International
Research Update; Ear, Nose and Throat; Orthotics; European Marfan Study Findings 13b. MARFAN INFO TAPE FOR THE VISUALLY IMPAIRED - �4 donation 13c. Information Leaflets - Min. of 50p per item helps us to re-print - Thank you 14. Care of Symptomatic
Marfan Joints - 2002�������������� 38. Impact on the Whole Family - 2004 15. Role of Nutrition in Irritable Bowel Synd - 2001����� 39. Management of Eye Problems - 2004 16. Pain Management - 2001�����������������������������������������
� 40. Inherited Ophthalmic Disorders - 2006 17. International� Research
Update - 2002��������������������
41. Orthopaedic Aspects of MFS - 2005 18. Genetic Testing in Marfan Syndrome - 2002���������� 42. The Alexander
Technique - 2004 19. The Use of Hormone Treatment - 1997����������������� ��
43. Fact Sheet - Large Print 20. Dental Health for Heart Patients (B.H.F)�����������������44. Infantile &
Neonatal Marfan Syndrome 1995 21. Living With Marfan Syndrome - 2004���������������������
45. Marfan Research Update - 2004 22. Pregnancy in Marfan Patients - 1996������������������������46.
Obstructive Sleep Hypopnea - 1995 23. Genetics & Insurance Brief Survey Result 1997�����47. 24. Addressing Special Needs of Siblings - 1997������������48. Health
Supervision - Birth to 21 yrs - 1999 25. Simon’s Poem - teens view, living with MFS 1985������������49. Genetics
and Insurance - 2001 26. Advice for the Older Marfan Patient�������������������������50.
Practical Paediatrics in MFS 2002 27. Revised Diagnostic Criteria ( 28. Marfan syndrome and the Eye - 2004�����������������������
52. ENT, Bone & Joint, & Dental Aspects 2002 29. Research Developments - 2005��������������������������������
53. Info Day Workshop - Growing Older 2002 30. Advice Regarding Feet & Footwear - 1996�������������� 54. Info Day Workshop-
Marfan and the Mind 2002 31. Physiotherapy for Joint Hypermobility - 2004�����
�����55. Info Day Workshop Growing with MFS
2002 32. Article: Midwives’ Journal & Reply-1996����������������
56. Joint Hypermobility - patient survey 2003 33. Sports Guidelines - 1993���������������������������������������������57.
Marfan and Pilates - 2003 34. FBN1 Mutation Screening - 2005�����������������������������
58. Orthotic Management of the Ankle/Foot 2003 35. Incidence of Osteopenia in MFS - 1995�������������������
59. Losartan - “A Whole Lot of Optimism” - 2005 36. Joint & Skin Manifestations Prevalent-
1995������������� 60. Ageing and Marfan Syndrome
- 2002 37. MFS & Overlapping Conditions - 2002�������������������
61. Joint Hypermobility Syndrome (pain mgmt) - 2003
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